Post by bob

Wow… One of those days!!!!

Sunday, August 31st, 2008

Yesterday I went to my son’s Football Jamboree and basically stayed out in the sun and rain for about 8 hours. I was having a terrible time trying to stay solid in my sugar levels. High Low ping pong was the rule of the day. I would go very low, have to eat something(usually with unknown carb counts that had to be estimated)and then go through the roof, take more insulin…stay high a while, and then crash and burn again..only to start over and do it again( 3 series of this if I recall correctly).

It is I guess, just the rules of the game.  I just keep trying to plow ahead and stay solid in my numbers, but some days…nothing I do seems to work right.

Oh well, I just keep going….

Wishing you “well”................Peace, Bob


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Post by anita

Getting Personal with Diabetes - Your Own Myths

Saturday, August 30th, 2008

While in the midst of writing some of this “myths in diabetes” series, I recalled some of my own misunderstanding(or gross misinformation) in the past before I learned more about diabetes.

I guess the biggest one was just believing that “sugar”, as it is called in my Caribbean home of
St. Vincent, was a nuisance but did not really DO anything. I was a kid and first hearing about this “sugar” when my mother was trying her hardest to convince my diabetic grandmother to take her medications and stop eating large quantities of sweet potatoes(her favorite foods) at lunchtime. In retrospect can only imagine how doubly hard this must have hit my grandmother as she and my grandfather ran a small candy factory, so sweets were literally a part of her life too. She was a strong woman, my grandmother, but also very stubborn. I think the combination of her own personality coupled with doctors who did not explain much at that time led her to pretty much ignore her diagnosis. She was a true matriarch of our family and it was terrible to see her after suffering a stroke that took away her ability to tell those stories that made us laugh, or to understand what we said that could make her throw her head back with that window-and-soul-shaking laugh she had. I guess this was her myth too, that diabetes would not do much but was just a nuisance.

What was your big misunderstanding before your or your loved one’s diagnosis? And how has it, if at all, changed for you?

Until next time, stay safe and healthy Everyone


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Post by bob

Fay ….here she comes

Thursday, August 21st, 2008

Well, living in Florida brings with it the joy of hurricanes. So far Fay has not been much but we are getting some sustained winds of 35-40 miles per hour and a lot of rain. I always wonder, do you batton down the hatches and stay put, or do you get out. It became clear back in 2005 as my family of 6 at the time was huddled in the pantry for about 4 hours worried about the horrific winds that were reeking havoc on my yard and home. when we went into the woods, you could see where an area of live oaks were spun out in a circle about 200-300 feet across….an obvious tornado…hence the freight train sound we heard.

That turned out to be a tropical storm of less than the designated hurricane strength(72 mph) but I can only tell you, that if a class 1 is for sure gonna hit us, me and my family will be gone…

I always worry about what do you take, how do you manage your diabetes, and when will you be able to get back. Preperation always helps make the transition during the storm a whole lot easier. Evacuation with the D….doesn’t sound like too much fun.

Best wishes and Keep going…..Peace,   Bob


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Post by bob

Diabetic Chinese skiier drops out of life after the olympics…

Tuesday, August 19th, 2008

Wow, This is really sad…........

NPR…....

Morning Edition, July 22, 2008 · China’s path to Olympic glory is littered with human sacrifice — that of athletes who failed to make it to the top ranks of sports.

The country now has tens of thousands of retired athletes whose single-minded dedication to their sport never equipped them for life beyond it.

From Champion To Invalid

Zhao Yonghua is 31 years old, but her lifestyle is that of someone much, much older. She lies in bed in the bare room she shares with her mother in the city of Tonghua, in northeastern China. Covered by a quilt despite the summer weather, Zhao has an IV in her arm and is too tired to speak. This is how she has spent much of the past 10 years. It is hard to believe this bedridden invalid was once a national skiing champion.

“My life then was just training. We trained at dawn, in the morning, in the afternoon, even in the evening,” she says. “We didn’t really do any school work.”

Her mother, Sun Fuyou, rifles through faded photos of a beaming young girl in ski gear.

She was just 13 when she left home to join the Chinese army’s ski team, her mother says. That was once seen as a preferable path to athletic glory because of the honor and material benefits of being a soldier.

In 1997, Zhao won four gold medals at the national championships. Then she got sick. The army coaches initially dismissed her illness as a cold. But when she ended up in the hospital, doctors diagnosed her with severe diabetes.

“When she left hospital, I asked the army if I could take her home to convalesce because her diabetes was so serious, but they said she had to go for winter training with the army team in northeastern China,” says Sun of her daughter. “When I left, she saw me off at the station and we both cried.”

Despite her perilous health, Zhao won gold and bronze medals a year later. But the training took its toll, and soon after she was forced to retire from skiing.

Selling Her Gold For Medicine

When asked if her illness is a result of her training, Zhao responds without stopping to think.

“Of course they’re related,” she says. “Because when you have diabetes, you’re easily tired. And training is extremely intense. Every day you’re exhausted.”

At that time, most athletes were assigned jobs – many as sports instructors or team coaches – or given compensation when they retired from their sport careers. Zhao was given around $1,000 but was never given a job, despite repeated pleas for work. Eventually, she ran out of money to treat her diabetes properly.

She was unable to afford the synthetic insulin used by most diabetics. Rather, she used a less expensive insulin extracted from animals. The lack of proper treatment brought complications. Her sight began to fail, and last year she was on the brink of blindness.

“Zhao bought a bottle of pesticide and wanted to commit suicide,” recalls her mother. “I persuaded her not to, telling her, ‘Heaven never seals off all the paths. You are so young.’”

The mother and daughter decided to sell one of Zhao’s gold medals to raise money for her treatment.

Zhao’s gold went for about $3,000 in a sale organized by the Olympic Star Security Fund, a Beijing-based charity that assists athletes facing difficult retirements.

Thousands Of Jobless, Injured Athletes

China Sports Daily, a newspaper run by China’s Physical Education and Sport Committee, estimates that of the country’s 300,000 retired athletes, 80 percent are jobless, injured or impoverished. Recognizing the scope of this problem, the Chinese government in 2007 decided to dedicate $4 million annually to welfare and vocational training for former professional athletes.

Ji Ting, founder of the Olympic Star Security Fund, fears many of China’s former sports stars will be unaffected by the government assistance.

“There might be some difficulties in implementation, because there’s such a huge group of Chinese athletes,” says Ji. “I don’t think it can cover every one of them.”

Ai Dongmei, a 27-year-old former marathoner, works for Ji’s charity. She also retired from sport at a young age, impoverished and with injuries.

To make ends meet after her government-subsidized athletic career, Ai began selling popcorn. With feet crippled from years of overtraining, she tried to sue her coach for inhumane treatment. She settled with the coach out of court.

Speaking in a low voice, Ai says things are better now. Today she is married, with a 2-year old daughter.

Sacrificing Health And Youth

Marriage and children remain an impossible dream for ex-skier Zhao, whose mother is brutally frank about her prospects.

“She has such a serious illness, no one would want her,” her mother says. “Other girls have boyfriends, get married and bear children — my daughter just lies in bed all day.”

Zhao and her family believe there is no possibility of recovery; her body was degraded for so long that she will likely never return to her former state.

Zhao gave her health and youth to China. Now, at an age many in the West consider the prime of life, she lies in bed in front of a blaring television. Weakened from overtraining, she failed as a sports star. But her years of athletic training also left her with little formal education, no useful skills and isolation from the wider society.

Like so many thousands of China’s discarded athletes, her future too has been sacrificed on the altar of national pride.


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Post by bob

Drivers License……Insulin Dep…bright red and on the front!!!

Sunday, August 17th, 2008

I happened to pull out my Fla drivers license the other day and noted the Insulin Dep in bright red on the front of my license. I remember a few years back when they started putting it on the licenses and it kinda bothered me back then. I know why they do it….low, in an accident, driving erratically, save my life….all that kinda stuff. But I really am not all that thrilled handing it to some clerk somewhere and having them see it.

I dont try to hide my D, but I don’t go around telling people I don’t know about it either. I wonder how if you had cancer, or a brain tumor, or HIV and had it listed on your license…how would people feel?

I guess it is what it is, but it still kinda irks me…..Oh well,,,control what you can and understand what you cant control….and no worries….

Keep going…...................Wishing you “well” Bob


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Post by anita

The Lesser of Evils? Side Effects and Diabetes Medications

Friday, August 15th, 2008

Dearest Readers, do not use this as an excuse not to take your medicines. Please….

First of all, ALL medications can have side effects natural medicines, too, remember. Many foods themselves have what you can call “side effects”. Grapefruit for example, is a healthy fruit, everyone can generally agree. Did you know that grapefruit is a natural diuretic meaning that it can make you urinate? You can call that a side effect. I am sure if your doctor gave you a pill for something else and then said, by the way this can make you urinate, you would call it a side effect then, right? So let’s just be honest and admit that when it comes to pills, we are generally more critical and suspicious. And that is okay healthy skepticism will probably keep us all out of some trouble from time to time! The main goal for you and your doctor is to find a medication that gives you the desired effects/benefits with minimal undesired bad effects. As they say, sometimes you have to take the good with the bad.

That being said, I am perfectly comfortable saying, yes, many diabetes medications do have possible side effects. Not everyone has problems and many people do not have ANY problems with the medicines. Some people do, and those are the ones you hear about. Upset stomach is a common side effect, as well as blood sugars going too low, but this often has to do with the dose you are taking. You will hear about possible liver disease with some of the medications, and this is true, but it happens uncommonly. If you are at risk for some particular side effects, which your doctor should know ahead of time, he/she will monitor you more carefully with blood tests or will simply chose a different medication. For example, if you have certain liver problems, there are several medications you should not take, and your doctor will know to avoid them. We thankfully have several options for treating diabetes, so the vast majority of individuals will be able to find a regimen that works for them without undue harm. There are many factors to consider and, for each individual, the weight that each factor holds may be different from someone else.

Remember that these medications are to HELP YOU live longer and healthier, so if your chances of a serious side effect are very small, but the medicine lowers your chance of a heart attack, think carefully before you ignore those pills. If your risk of a serious side effect is higher for some reason, work carefully with your doctor to find another way of treating your diabetes without harm to yourself. We have options, let’s exercise the right to examine them!

Until next time, stay safe and healthy everyone


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Post by bob

Nick Jonas and Elliott Yamin…..livin out loud with the D

Wednesday, August 13th, 2008

Recently Elliott and Nick have been very helpful in putting a face on diabetes. As type 1’s who are using insulin pumps, I think they are helpful to many diabetic kids and adults alike. I hope that they are influential in encouraging folks to focus on tight control to help minimize long term complications. They re helping show the world that the numbers on this disease are getting pretty scary.

Every 30 seconds, another diabetic is diagnosed in the U.S.

Every 3 minutes, a diabetic dies in the U.S.

Every hour, 24 hours a day, 9 diabetics in the U.S. lose a part of their body to removal/amputation.

I hope everyone who is D sits up and takes notice that this is a disease that must be controlled and managed successfully by each diabetic. The outcome can be good or pretty terrible, it is chronic and non descriminating….it just is.

Wishing you “Well”      Peace…............Bob 


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Post by bob

Just spoke to another Diabetic struggling with the costs of diabetes healthcare…and I don’t mean just money!!!

Friday, August 8th, 2008

I met another Type 1 diabetic last evening who was on MDI and was leery of using the pump. His thoughts were that he already knew what he was doing and thought he was doing good enough…..however after less than 20 years as a diabetic he did mention that his feet would sometimes tingle….ruh roh….He also mentioned how he really doesn’t test but 1x a day or so.

I always try to push people to manage themselves much more tightly so as to stave off damage from long term highs…

He was interested in the CGMS but when he heard it was 235.00 a month, he said he couldn’t afford it. I thought to myself, wow…..guess what your true costs are gonna be as you go another few years with less than stellar control…the cost of diabetes is not just dollars, but also in life and limb.

Please, Please, Please…..do whatever it takes to gain control, and if you have to, work a second job to pay for your supplies,  find assistance somehow, somewhere, but don’t short yourself the absolute best care possible….This is your LIFE!!!!!!!! You won’t be handed another body if this one fails!!!!! Your loved ones deserve your best efforts possible…    Keep Going…

PEACE…..........

Wishing you more…..Bob


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